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When we started this blog in Sept. 2015, it was our intention to share Paul’s experiences with alternative prostate cancer treatment (specifically transurethral hyperthermia.)  When initially researching the procedure, we were frustrated with the limited information we could find on the treatment results. If this treatment was helping (or possibly curing prostate cancer), where were the success stories?  We were determined to share our experience openly so that they next person considering this treatment would have the full benefit of what we learned.

Three years later, having determined that the alternative treatment was not curative, Paul will be undergoing traditional treatment in the U.S.

This blog continues to get traffic and we often hear from men who are struggling with treatment decisions. Many of the questions we receive were answered in earlier posts, but we certainly don’t expect anyone to read ALL of our previous posts (despite how riveting they are – lol.)

So, here’s a shortcut to the highlights of the past three years:

  1. About us. Here’s the background on the two of us and why we decided to undertake this project.
  2. Initial Diagnosis. How Paul’s cancer was discovered, initial PSA and biopsy results. Our research on how transurethral hyperthermia works and the various clinics in Germany where it is offered.
  3. Treatment in Germany. There is a daily recap of the five days we spent at the Marinus Clinic in Germany starting HERE and ending HERE. There is also a page of photos of the transurethral hyperthermia equipment as well as tips for anyone considering visiting the Marinus Clinic.
  4. Updates at 30 days, six months, and one year after treatment.
  5. Results of Sept. 2016 MRI.
  6. Our move to Denver, CO and decision to get a mapping biopsy to determine if the cancer had gotten worse. This post also includes our (differing) conclusions about the ultimate results of the treatment in Germany.
  7. The mapping biopsy results showing that Paul’s Gleason score was higher than originally reported, as well the fact that the cancer has spread to his seminal vesicle. His cancer was re-classified as stage 3 and we began looking at both surgical and radiation treatment options.
  8. The results of a February 2018 CT and bone scan that confirmed the cancer had not spread to other organs.
  9. Treatment Plan. Paul’s decision to proceed with radiation combined with hormone deprivation (beginning July 2018).
  10. Treatment is underway. ADT hormone blocker therapy and pre-radiation testing.

July 2018 – Treatment is (Finally) Underway

Screen Shot 2018-08-03 at 3.47.18 PMAt long last, operation “Let’s (Finally) Cure Paul’s Prostate Cancer” is underway.

On Monday, July 16, Paul began Androgen Deprivation Therapy and received his first Lupron injection which will block his production of testosterone. This first shot will last approximately three months, but the doctors are recommending that he stay on the Lupron for at least a year as there is significant medical evidence that the combination of the testosterone blocker with radiation treatment improves long-term outcomes.

We continue to be concerned about all of the possible side effects from the Lupron. But so far, Paul is managing fairly well, although he’s started to feel fatigued. He is continuing to exercise and “eat clean” (most of the time) and I think that is helping him feel more normal. He’s also super busy with his new job which is a welcome distraction.

Next steps are:

  • September 18th – appointment to insert markers (to track the position of the prostate during treatment) and a SpaceOAR Hydrogel. SpaceOAR hydrogel is an option for men who undergo radiation treatment for prostate cancer. It acts as a spacer providing space between the rectum and the prostate, making it much less likely that the rectum is exposed to radiation. It is injected into place prior to the start of radiation treatment.
  • One week after the markers are inserted, an MRI and CT Scan will be conducted so the radiologist/oncologist can finalize his radiation treatment plan. It takes a couple of weeks for them to analyze the results, so they won’t officially schedule his radiation until this step is completed.
  • September 26 – CT Scan and MRI
  • TBD October – Radiation begins. We should be underway by mid-October but we can’t get a firm schedule until the steps above are completed.